Tiny heart, big breakthrough: Norton Children's Hospital saves infant with rare surgery

Norton Womens and Childrens Hospital. An infant rests on an exam table while a hand places a stethoscope against the infants chest.

Hearts have a special meaning for Heavenleigh Weilage. For one thing, she was born on Valentine鈥檚 Day 2022. For another, she was the first child in the country to receive a pacemaker so small it鈥檚 the size of a large pill.

When Heavenleigh was born at Norton Children鈥檚 Hospital at 28 weeks, she weighed only 3 pounds and had structural heart disease 鈥 holes between the chambers of her heart, as well as a complete heart block that interfered with the electrical signals that keep a healthy heart beating. She needed a pacemaker, but an operation to implant one had never been done on such a small baby. Moreover, the only pacemaker that would work had never been used on a human before.

鈥淲e had to get FDA approval pretty quickly, and we had to get emergency use authorization to approve this device for human use,鈥 , a pediatric cardiologist鈥痑t Norton Children鈥檚. 鈥淭his was specially engineered for the smallest of children, and in fact, Heavenleigh was the first human that we ever implanted this in the whole world.鈥 Heavenleigh received the pacemaker when she was just 4 months old.

Now 3, Heavenleigh has received a larger device and will require a pacemaker for the rest of her life. 鈥淪he鈥檚 already making a difference in the world,鈥 said her mom, Becky Weilage. 鈥淲e鈥檙e pretty popular down at the hospital. We go in, everybody knows who we are. 鈥極h, how is she? She鈥檚 gotten so big!鈥欌

While Heavenleigh was the first to receive this type of pacemaker, she is certainly not the last. Since her procedure, as many as 45 similar pacemakers have been implanted in children across the country.